The chemotherapy that Presley is currently taking does not affect her hair as strongly as some the others. This means hair growth!!! For the most part this makes me smile. But I'm a little afraid, doing girls hair is drama and I think I forgot how to do it. I find her little rubber bands and I always think...It's so nice I don't have to style her hair. I have grown to love that bald head so much. It was such a hard day to shave her head, much harder than I thought. 3 doses of vincristine and her hair changed texture, began to matte really bad in the back, and was falling out in handfuls. I couldn't keep it managed and it was a mess and so sickly looking. We shaved it. During the summer months this year her hair was growing as her chemotherapy was not affecting the hair loss. The doctors had told us that her hair would fall out again during Delayed Intensification so during the summer we just shaved it every few weeks. It had that "chemo burn" (that is what we call it), and it was not healthy. Then DI happened and she lost her hair all over again. During that round she lost every last eyebrow and only a few eyelashes were hanging on. One day I woke up and it was all gone. She was so pale, and no hair on her face, to me that was a harsh reminder that she was sick. It took about a month or two for new growth to happen. I swear it was over night and she had her cute lashes and eyebrows back! I just stare and smile and tell her...you are just the cutest thing ever! With a full set of lashes, eyebrows and new hair growth I find myself again just looking at her and smiling. I know that I will miss that bald, no drama haircut but I can't wait to watch all that hair come in. I think we have finally convinced her that it's not going to grow in pink. It's dark and I pray those curls come back! I can see her funky cowlick in her hairline, I just touch it and stare at it, it makes me smile. I miss and remember those last few days when her hair was falling out. I mentally wanted to remember the feeling of stroking every last curl.
Her are a few pictures of her being silly. I made this "tutu" for her because she was turning two! I spent hours ruffling yards and yards of fabric. It was worth every minute, she loves dancing in this tutu! When she's dancing, she's got this skirt on!
The dimple, The funky cowlick, the beautiful eyelashes, and the stork bite/angel kiss! These 4 things are Presley's trademarks! They make her the SUPER Girl that she is! I can't describe how I feel about these beauty marks on her. The dimple is easy, the cowlick I use to hate...I love seeing it come back in because I know that is her marking. Like a hand print that is different, her cowlick is unique to her. The eyelashes, oh I have missed those. The stork bite/angle kiss on her forehead is such a gift. When her blood levels are low you can't see the angel kiss. Today that kiss is glowing and its a sign to me that she's doing good and that her blood levels are good. When she was little people were always worried about the angle kisses on her face. We were told it was a blemish. I'm so glad that angel kissed her face and left that mark on our sweet girl.
I love you Presley more than words can describe. You are a SUPER girl. Don't ever forget that Presley. You are strong and brave and every inch of you is perfect. I love you from the top of you bald head way down to the bottom of those cute toes that are always polished!
You made my day today!!!
ReplyDeleteShe is looking alive again. I've noticed it lately! Love that sweet girl, and the little man and the parents not pictured!
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