Tomorrow

Tomorrow is treatment day. If her ANC is 750 or higher we will start the next phase of treatment. I'm scared, my anxiety has been high the past few days. I don't want Wednesday to ever happen. The last two weeks off has been such a gift. Presley is so happy. Presley is pain free, not crying, no medications, she plays all day long and have a lot of energy, she is walking and sleeping through the night. We have been riding our bikes everyday. She is so strong. I often have moments where I forget about cancer. Life have been carefree. We have forgotten about some of those horrible days. I don't want to do this all again. Life has been so perfect for the past two weeks. It's all out of my control all I can do is hope and pray that Presley will respond to treatment and that her symptoms will be minimal. How can I take her to treatment knowing this new chemo is a hard one? Some cancer kids have to be hospitalized to be watched for 3-5 days. Monitoring the level of chemo in their body to see if they have to do a reversal drug. The good part about it, is that it's one day closer to being done with treatment.

Childhood cancer is like a roller coaster ride. One day your up and next your down. Its full of twists and turns. So much is unexpected. With every drop you find your heart in your shoes anticipating the unknown. You try to close your eyes but that doesn't help. So you do the only thing you can, hold on!

The next phase (Phase 3) - Interim Maintenance
(50 days -7 weeks)
Day 1- Methotrexate and Vincristine by IV
Day 11-Methotrexate and Vincristine by IV
Day 21-Methotrexate and Vincristine by IV
Day 31-Methotrexate and Vincristine by IV and Methotrexate in her spine (Lumbar Puncture)
Day 41-Methotrexate and Vincristine by IV

We will go to clinic every 10 days. The symptoms will include: nausea, vomiting, mouth sores, constipation, low energy and low lab numbers (CBC), more blood transfusions, platelets, and higher risk of infections. We will hang low and be house bound.
Praying the roller coaster of life will be easy on us for the next few weeks.

Sweet girl, you are my hero. Always smiling!