a day early to clinic

Today is Tuesday and we were not expecting to go to clinic. First thing in the morning Presley was crying while going potty. Called clinic and they had us come in to do a urine sample. It come back positive for a UTI. Presley was put on an antibiotic got chemo (a day early) and we were sent home. It really wasn't that easy! We were at clinic for 4 hours, such a drain on all of us even Crew. Presley's hematocrit (red blood cells) 23.3 at at 24 they usually do a blood transfusion. The doctors decided to send us home knowing that soon we would need blood. The chemo is really working on those rapid growing cells and even kills the good cells. Her platelets and her ANC are low too. Her ANC is only at 300 :( We will keep her locked up and masked and clean like a crazy lady! 

Wearing her bling and its got gold!

 Doctor Wright decided to just start our next round of chemo today since we were already in clinic and that would save us another trip tomorrow and one less port access. So Presley is accessed and will need to stay that way again for 4 days. She will be getting Ara-C (IV chemo) again for 4 days in a row. 

It was quite the social event today at clinic. We finally got to see our favorite nurse Kristen. Really they are all our favorite but there is something about Kristen that calms Presley's nervous. She really loves all the nurses and they love her. We saw Reiss at clinic getting his chemo and we got to see our friend Megan! Chemo buddies are the best. We relate and having friends with "ports" makes us feel much better that we are not the only ones! Reiss is starting his second week of steroids on DI and Megan is starting DI today. My heart and mind is always so heavy for all these little fighters. We also ran into Joe and Annie (therapy dog) and Danika (Presley's Home Health Nurse) and Doc Flushel in the food court.    We updated him on her numbers. 

           Happy Girl to have Kristen back! Painting a truck for brother...its PINK!

Our cancer buddy Megan!

Look who showed up too! We love you Reiss. Not the best picture but the only one I could get! Reiss had to get a shot and that is NO fun. We don't blame you that you didn't really want to get your picture taken. 

We got home and about 4 hour later she started fevering. I dread fevers. Fevers and a low ANC means in-patient. NO FUN. Called the on-call doctor and sure enough they had us come in. Daddy took Presley to the hospital. Thanks goodness she was already accessed and they know her ANC is 300 so we could go straight to the 4th floor and avoid the ER drama. As I'm writing this post they are doing blood cultures and giving Presley Tylenol as she sleeps! I hope Paul and Presley get a good night sleep. We are all running off little sleep and high stress. Praying that the fever has something to do with the Chemo and the UTI and nothing else on-top of it all. Thanks for your continued love and support. Its been a long 6 months. Longest  months of my life.