Day 2 -Inpatient

Today was a special day. My heart is still smiling. We spent the day in the hospital with a 3-year old that just got a blood transfusion. Mama is tired. Presley has had so much energy, and keeping her entertained in a hospital room is a hard task. I kept joking that I was going to call Doc Fluchel and have him come look at her! The nurses even wondered why she was still at the hospital! The protocol is that you have to stay for  24 hours after the last indicated fever. Each night her fever would show up and then be gone during the day. UGH, another day we stay. Today, Presley was able to put together her "Beads of Courage". In her little mind she does not understand what each bead represents but someday will and learn of the hardships she once bore. We didn't start the necklace from the beginning because it was just too much. But we are almost 6 months in and thought it might be a good project to do while at the hospital. Hillary (child life specialist) helps us collect all the beads that show Presley's cancer journey thus far. Each bead represents something hard Presley has done. The yellow bead I'm holding in my hand in the pictures before is my favorite bead. This bead is the "remission bead" She earned this bead on day 29 after diagnosis. Remission, no more traceable amounts of leukemia. That was a day we jumped for joy. Presley said her favorite bead was the pink and purple bear.....I really think those are the worse beads. Those are for the 2 rounds of steroids she has completed. UGH. She earned those beads. I love the bead she eared for going bald and the bead for getting her port placed in her chest. Stringing these beads today was a walk down memory lane. I cried. These beads mean so much to me...I know these will go in a shadow box one day. Holy moly has she had to endure a lot of port accesses, clinic visits and so much more. They are out of the chemo beads so her necklace will double in size when we get those.  Presley also had a special delivery, Shoe Fairies! We have been waiting or her shoes and today was the perfect day to give us a distraction for the hospital stay. Madison (founder and President) of a Peaches Neet Feet did the artwork on Presley's shoes. We are secretly hoping Madison would do the shoe designer. We could have had a Disney Princess or Hello Kitty. But was wanted someone more unique. Madison drew a princess castle, Heart Breaker super power, Ice cream and an ice cream truck and of course the hash tag #hopeforPRESLEY! Presley loves to spell her name and when the nurses check her bracket to give her medication she always spells it out. She was so excited to see her name on those shoes. They are pink with GOLD accents and have the famous Peach! We are in love. They couldn't have been any cuter!  This time around its not RSV season so brother has been able to come and visit. It makes for craziness but everything is right in the world when the kids are together. Crew wakes up in the morning asking for Dede (sister). Presley endures physical pain, Crew endures emotional pain from all this.
Presley's ANC is at 0 so she has no immune system or cells to fight an sicknesses.
Here are a few pictures from today!

Cancer Sucks! Thanks Joe and Elliot for the new bling!

Bald bead, remission bead and Presley getting the letters to her name

That's one long necklace represents a lot of brave times for our little fighter. 

Playing with Faith!

Elliot and Joe came to visit. We love when they knock on the door!

Something captured in this pictures that I adore can't put my finger on it.

This girl does a lot of painting!

Carrots and ranch were her favorite this trip. The carrots are shreeded so tiny because she is under 4.  

Entertaining this 3 year old in this room is exhausting.

Getting her new shoes today! Still smiling!

Brother got to spend the evening with us. I think the nurses were glad when we went to bed! I love Crew in this pic!

Nana sent a special package to Crew for his party. He was so excited. It was the perfect timing. Presley got her shoes and Crew got spoiled from Nana, Papa, Cousin Jerry, Jen-Jen, Wendi and family. We LOVE you guys!

Our little aviator!