March Clinic Visit

Back to reality. The weather today reflected my mood. Cloudy with a chance of rain. In every ones life a little rain must fall and the winds will blow. That's the season of our life. Trying to find the rainbows and the pot of gold at the end. In every rainstorm a beautiful rainbow follows, what a gift.
Today's clinic was long. Presley takes an alternative to her weekly Septra (antibiotic). She was sensitive to that drug so she take an alternative. It complicates things a little while at clinic. Instead of taking 4 oral does on Monday and Tuesday each week she is given an IV given over an hour once a month. This drug is not as common and takes a while to get from the pharmacy. So clinic was long.
Presley's numbers looks good. They are coming back high since we did a chemo hold and took her of Septra. Doc said he would increase her chemo next month if her neutrophil count (ANC) is still high. The doctors want to keep this number somewhere from 750-1500. Today her ANC was 2,600 We will keep her nightly chemo the same for another month and see what her numbers look like next month. 

 We got to see one of our cancer buddies today in clinic. We always love when that happens. 

 Presley made a card for daddy and Grandpa. We have been working on learning to write the other letter in the alphabet besides her name.

Today clinic visit also started a 5 days of steroids. UGH. These are the hardest for Presley to endure. 
She spends her week down and out. She does not act like herself and does not want to play. We spend a lot of time in the rocking chair and no heavy pain meds. She uses her blanket to twirl her fingers as a nervous habit. An adult once said on that dose of steroids you feel so revved up but at the same time exhasted. We are always so glad when we had that last 10th pill. Its takes a few days for the roid rage to wear off. One of the best feeling to feel is when your child is feeling back to themselves. I'm able to breath and relax and now my sweet girl is not suffering any more. 

We also spend a lot of time eating...well Presley because of the steroid and me from the anxiety this all causes. Usually she wants McDonald french fries and chicken nuggets but I have been really trying to get her back to eating healthy again. Nutrition is such a huge part of healing. A 3/4 year old on steroids is very hard to convince but this month we were lucky. She ate to big containers of greek yogurt by herself with granola and strawberries on it. About every 2 hours she would need a refill.