Trip to the ER

April 2-

Yesterday, Presley spent the day not far from the toilet. By the second day, I couldn't keep much down her. I wish I would have taken her into the clinic, but was really hoping to make it to clinic on Wednesday, and avoid a second trip. After talking to the on-call Doctor, (yes this number is now a number in my phone along with many others; clinic, pre-reg ER number, and after hours numbers) she decided we better spend the night to figure out what is going on and get Presley some fluids. We spent most of the evening in the ER, and finally got a room on the 4th floor to stay the night. Again, wished I would have had a packed hospital bag ready to go. By this point, Presley had figured it all out. Mommy talking on the phone, putting EMLA on the port, and scrambling that we are headed to the hospital. The ER is not my favorite place because they are not as familiar with port access, and you could tell. The charge nurse was wanting to teach another nurse, and I finally said, "No more!

This has been accessed in 2 min." Presley was very upset about this port access. The nurse wanted her to lay down and take her shirt off. He didn't understand this was not going to happen. At clinic they are so good at letting her sit on my lap and just letting me pulling the neck of her shirt down. I had to apologize to the nurse, but he understood.  Presley was started on antibiotics again, and a blood culture to figure out what was going on. This time, Presley had the Rotovirus. Just our luck. We had even had that immunization and it didn't work. The Doctor told us that the immunization in the past few years had missed the strain and that the vaccination didn't help. Just want I wanted to hear!

April 3-

Today would have been clinic day. She got chemo as scheduled for day 22. We are at day 22!
I got to spend the day in the hospital for my birthday. Auntie Erin came and brought breakfast and dinner. I was thankful for the distraction. Presley was excited to eat chocolate cake and sing to me! Another day, I wish to erase from my memory :( My birthday wish was to see a smile that day, and it was granted! I have learned that life really is about family, and the small and simple things.

April 4 -Still at the hospital, the Rotovirus is no fun. We have not slept well, up every couple of hours changing pull-ups and wanting to be comforted. And you know, vitals at 2 am! Presley has become to weak to stand on her own or to roll over. The steroids create muscle weakness and laying in bed with diarrhea doesn't help.
April 5- Still in the hospital. So over it. I have no words.
April 6- Still here. Diarrhea starting to slow down, hoping to go home sometime soon!
April 7- Today was a big day. Doctors told Presley she could go home! Wait. Why is she crying, she should be happy? Oh,  she has figured out that going home means taking the "sticker" off her port. This is the single, most painful, stressful, experience for Presley.

My dear friend Merrideth came, to help us buzz her hair. I didn't think this was going to be very hard. 

I was wrong.