Clinic was the busiest I have ever seen that that meant we had friends today to talk to! Reiss buddy was in the waiting room and the kids made a snowman ornament together. We also ran into Cami! She is back to her sweet self. That makes my heart sing. She was giving cancer cuties some of her beanie babies. Such a sweet cancer buddy. The really brightened our day to hear and see that sweet girl and not see her all curled up in a wheel chair too sick to say hi. We also got to talk to two other cancer moms who I talk to on Facebook but never met in person. We were scheduled at 10:30 and never saw the doctor until about 12. Thanks for the friends today to keep us busy Presley was starving and so thirsty by 12:30. We didn't make counts and it was not our usual doctor so our doc visit was short.
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| Chemo Friends. We love you Cami! |
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| Thanks Wendy for the markers so I could write on the white boards! |
We are on a study and during this phase a randomization will happen. The computer will determine how maintenance will look for us.
There are 4 arms:
Arm A: standard dose of chemo every 4 weeks
Arm B: Higher dose of chemo every 4 weeks
Arm C: Standard dose of chemo every 12 weeks
Arm D. Higher dose of chemo every 12 weeks
This is the short version. She still will take a chemo every night no matter which arm she gets and pulls of steroids either every 4 weeks or 12 weeks, and IV chemo (back poke chemo) every 12 weeks.
I'm trying hard to not really focus on what are we get. My hope is obviously less chemo and less so arm C or D, but its random. I don't want to get my hopes up. I hate let downs. But at the same time you want more chemo for fear of relapse. You get what you get!
Its a strange feeling not knowing Presley blood work weekly. I have really struggled. Other cancer moms say this is a hard transition. Going from knowing an being reassured every week that the blood work looks good to only knowing once a month. During our friday night ER blood work was such a huge relief. Presley has been so sick and reminding me so much of pre-diagnosis. Lets just say, panic, worry, anxiety and more worrying was happening last week.
Thanks Persnickety for the darling Christmas outfit, she looked darling today. She wanted to wear her Christmas dress to clinic today! I can't fight everything..she has to have some say in what she does.
So we have not quite started the next phase. We will recheck counts (blood work) on Friday and go from there. Until then...we have some major party prep! Super P to the rescue!
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