Southern Utah Trip Cut Short

We went to Southern Utah to enjoy cleaner and warmer weather. Crew always feels so couped up in this tiny apartment. Presley had been coughing at night (for 4 days) but figured it would work it ways out. We got to New Harmony Sunday night. Presley cough persisted and wasn't getting any better. Crew was happy for some open space and Presley was excited to watch Disney Jr. Paul was happy for some hunting and shooting time. By Tuesday Presley was not looking too good, looking more like a ghost each day. I called clinic to see how we were going to get a CBC done for Presley while we were in Southern Utah. I didn't think it was going to be that complicated. The nurses told me we would have to go to an out-patient lab and she would have to have a peripheral arm stick. NO way was I going to make her go through that. After all...that's why she has a port. I knew she would never forgive me for that. I could have taken her to the ER but we figured we would just pack up and head home a few days early. Then we could get to clinic and get our little vampire some blood! That night turned into a mess...taking Brother to the ER with a barking cough. We packed up and left wed morning for home. I called to see if we could get an appointment from 3-4pm that night to see what was going on with Presley's numbers. Once again I was told...NO. By this point I was pretty upset. I don't think the nurses believed that Presley was low on blood. Her current maintenance drugs should not have that much effect on her RBC (red blood count) but needless to say she was very pale. Even more pale when she was first diagnosed. I did not understand why the nurses or receptionist would not believe me that she needed a CBC and that we had come all the way home for this. They told me they wouldn't see us this afternoon because they are trying to "cut down on port access due to port infections". At this point I was so very upset. I knew I have been lied to and that is hard. I knew they just didn't want to take us in the afternoon because it would make their schedule a little too busy, or they might not get out early. In the next sentence they told me I could have home health come and do a port access for a CBC. Thinking...right so your really worried about port infection? No you just don't want us to come tonight. They gave me an appointment for the next morning to come. Again...I felt so upset. They were not okay with me coming tonight but tomorrow they would be perfectly fine with a port access.  I could have taken Presley to the ER but I really wanted her to be seen by an oncologist not just the ER doctor, too. She has been coughing her guts out for the past week.  I wanted the oncologist to see the blood results. I was so concerned and worried. Wondering why she needed blood and was so sick. Being at m mom with a pale little girl reminds me of a time I don't want to really remember.